Each month we hold a business meeting to keep track on what we do to raise money and to ensure that what we do is enjoyable.
At the end of the meeting, Sally Bromley who has Parkinson's stood up to give an emotional speech. Please read this to remind ourselves why our President has chosen this particular charity. Thank you.
Good afternoon and thank you for choosing Parkinson’s UK Oxford branch as one of your chosen charities.
My diagnosis was over eleven years ago. I thought I was prepared, but no, I heard those 3 little words, You Have Parkinson’s, and I heard nothing else of that consultation. Such is the impact.
Parkinson’s is a complex condition with no two people having the same symptoms such as... a shuffling walk, a stooped gait, loss of your sense of smell, excess saliva, anxiety, loud and active sleep, slowing up generally, and the distinctive tremor, and it’s a chronic and progressive illness.
I am the Chair of the Oxford Branch of PUK and we are an upbeat group. We are proud of the links we have with the hospital clinicians, OPDC, Ox Uni and Brookes Uni. Members volunteer for research studies into non-motor symptoms such as motivation, depression, apathy and reward.
Our fundraising efforts are used to support a range of exercise opportunities, respite care, grants to go to Italy for a week of intensive therapy, visits, lunches together as well as research projects in Oxford. Our major fundraiser, the Oxford Walk is coming up on Sept 22nd.
Most of us fear our future. We smile, we chat, we have a cuppa, we tell our families and friends how well we are.......when we have a good day.......and avoid these things when P takes a hold on us on a Parky day.
We rely on the dedication of scientists, technicians and data analysts in their quest to reach a mitigation of this condition that can so cruelly consume bodies.
It will take time, it will be the focus of many conferences, it will involve still more clever people, it will create further collaboration between other institutions, both national and international, to reach our goal. Each of us living with Parkinson's would so love to be able to say:
I used to have Parkinson's.
Sally Bromley ( Parkinsons UK)
Sept 11th 2019